Rare Disease Strategy Act, 2025
Sponsored by Gélinas, France, Lennox, Robin · First Reading Ordered for Second Reading
- Requires Ontario to implement recommendations from the 2017 Rare Diseases Working Group Report as soon as practicable
- Notes these recommendations were never implemented since the 2017 report
- Requires government to post a public update every six months on progress
- Updates must list which recommendations are done and steps for remaining ones
- Updates continue every six months until all recommendations are implemented
- Amends the Health Protection and Promotion Act to add this requirement
- Short title is the Rare Disease Strategy Act, 2025